WEBVTT 00:02:03.000 --> 00:02:03.000 be a totally verbatim record of the *This text is being provided in a rough draft format . Communication 00:02:03.000 --> 00:02:03.000 communication accessibility and may not Access Realtime Translation (CART) is provided in order to facilitate 00:02:03.000 --> 00:02:15.000 proceedings .*. 00:02:15.000 --> 00:02:24.000 00:02:24.000 --> 00:02:29.000 APRIL 2020. 00:02:29.000 --> 00:02:47.000 Tuesday, October 13, 2020. 00:02:47.000 --> 00:02:59.000 Dear CILs: Here's a to expect from 00:02:59.000 --> 00:03:29.000 your SILC and other messy stuff. 00:15:26.000 --> 00:15:56.000 Good morning, everyone, we will be 00:18:12.000 --> 00:18:13.000 starting in about 5 minutes. 00:18:13.000 --> 00:18:15.000 Good morning, if you are just 00:18:15.000 --> 00:18:18.000 joining U we will be started in about 2 00:18:18.000 --> 00:18:19.000 minutes. You guys are already blowing 00:18:19.000 --> 00:18:21.000 up the chat saying good morning from 00:18:21.000 --> 00:18:51.000 across the country, so excited to see 00:20:06.000 --> 00:20:15.000 you all this morning. 00:20:15.000 --> 00:20:23.000 Good morning! Or good afternoon, 00:20:23.000 --> 00:20:31.000 wherever you may be. And welcome, I am 00:20:31.000 --> 00:20:33.000 Brook e Wilson, a member of April. We 00:20:33.000 --> 00:20:37.000 have our two presenters, Cathy cooper 00:20:37.000 --> 00:20:47.000 who is the executive director of the 00:20:47.000 --> 00:20:59.000 SILC in Kansas and Amy who is the executive director of the Topeka -- um, 00:20:59.000 --> 00:21:01.000 what is it called? Independent livving resource center 00:21:01.000 --> 00:21:04.000 A few housekeeping items -- we 00:21:04.000 --> 00:21:06.000 should all be pros by using Zoom at the 00:21:06.000 --> 00:21:09.000 end of the week. If you scroll over 00:21:09.000 --> 00:21:09.000 the screen, a menu bar will pop up, 00:21:09.000 --> 00:21:11.000 depending on the device and what you 00:21:11.000 --> 00:21:13.000 are using. It will be either at the 00:21:13.000 --> 00:21:15.000 top or the bottom of the screen. This 00:21:15.000 --> 00:21:17.000 is where you will find the closed 00:21:17.000 --> 00:21:18.000 captioning for today's session. In 00:21:18.000 --> 00:21:23.000 addition, we will put the stream text 00:21:23.000 --> 00:21:24.000 link in the chat box. For sign 00:21:24.000 --> 00:21:26.000 language interpreter, we do have those 00:21:26.000 --> 00:21:29.000 available today and they will be on the 00:21:29.000 --> 00:21:31.000 main screen. If you do not see the 00:21:31.000 --> 00:21:33.000 interpreter, please make sure that you 00:21:33.000 --> 00:21:35.000 are in gallery view and that will allow 00:21:35.000 --> 00:21:37.000 you to see more than one person at a 00:21:37.000 --> 00:21:39.000 time and we will try minimize the 00:21:39.000 --> 00:21:40.000 number of people shown on the screen by 00:21:40.000 --> 00:21:42.000 turning off our cameras. 00:21:42.000 --> 00:21:46.000 Most of you have already found the 00:21:46.000 --> 00:21:48.000 chat, but in order to find the chat, in 00:21:48.000 --> 00:21:50.000 the same menu, there's a little word 00:21:50.000 --> 00:21:52.000 bubble and if you click on that, you 00:21:52.000 --> 00:21:56.000 can join in the discussion. Everyone 00:21:56.000 --> 00:21:59.000 is saying, "hello" and what the weather 00:21:59.000 --> 00:22:00.000 is like where they are. For Q and A, 00:22:00.000 --> 00:22:03.000 though, we would really encourage you 00:22:03.000 --> 00:22:06.000 to use the Q and A box, which is also 00:22:06.000 --> 00:22:10.000 found in the menu. It looks like two 00:22:10.000 --> 00:22:12.000 word bubbles and it says "Q and A" the 00:22:12.000 --> 00:22:13.000 chat tends to move fast and we don't 00:22:13.000 --> 00:22:17.000 want to lose your questions. 00:22:17.000 --> 00:22:19.000 To ask a question or a comment, 00:22:19.000 --> 00:22:23.000 please use that feature. You can also 00:22:23.000 --> 00:22:26.000 raise your hand, which is also in the 00:22:26.000 --> 00:22:28.000 menu. We will unmute you so that you 00:22:28.000 --> 00:22:31.000 can ask a question in that manner. If 00:22:31.000 --> 00:22:34.000 you are calling in by phone, you'll 00:22:34.000 --> 00:22:39.000 have to use that and you can use star 9 00:22:39.000 --> 00:22:41.000 to raise your hand. So if you are 00:22:41.000 --> 00:22:43.000 using the unmute option, please try to 00:22:43.000 --> 00:22:44.000 minimize your background noise so that 00:22:44.000 --> 00:22:48.000 we can hear you. 00:22:48.000 --> 00:22:56.000 So without further ado, I will 00:22:56.000 --> 00:22:58.000 turn it over to Kathy and Amy 00:22:58.000 --> 00:23:00.000 » Kathy: Thank you. It's so 00:23:00.000 --> 00:23:01.000 intriguing to me to see all the people 00:23:01.000 --> 00:23:06.000 that are joining from all the different 00:23:06.000 --> 00:23:07.000 state, centers and SILCs. It's a 00:23:07.000 --> 00:23:10.000 little nerve racking at the same time 00:23:10.000 --> 00:23:12.000 because as I am sitting here watching 00:23:12.000 --> 00:23:15.000 them flow through, I am seeing some of 00:23:15.000 --> 00:23:21.000 my past chairs, some of my current 00:23:21.000 --> 00:23:22.000 board members, and People that I have 00:23:22.000 --> 00:23:24.000 worked with as a peer mentor. So I 00:23:24.000 --> 00:23:27.000 don't know why that makes me nervous, 00:23:27.000 --> 00:23:29.000 but it does a little bit. So thank 00:23:29.000 --> 00:23:31.000 goodness I have Amy here to help me 00:23:31.000 --> 00:23:35.000 because she's a pro and that's pretty 00:23:35.000 --> 00:23:35.000 presentation. 00:23:35.000 --> 00:23:37.000 much why I asked her to join me on this 00:23:37.000 --> 00:23:40.000 I am hoping that everybody asks a 00:23:40.000 --> 00:23:43.000 lot of questions, so it's not just us 00:23:43.000 --> 00:23:47.000 here talking at you the whole time, so 00:23:47.000 --> 00:23:50.000 we really do want questions. I will 00:23:50.000 --> 00:23:59.000 let Amy go. 00:23:59.000 --> 00:24:06.000 » Amy: So hi, my name is Amy 00:24:06.000 --> 00:24:08.000 Hyten as Brooke said. My pronouns are 00:24:08.000 --> 00:24:11.000 she, her, and hers. I am currently 00:24:11.000 --> 00:24:13.000 sitting in a hotel room in DC. I have 00:24:13.000 --> 00:24:16.000 long hair that used to be black with 00:24:16.000 --> 00:24:21.000 gray, but now it's gray with black 00:24:21.000 --> 00:24:22.000 after 17 years at Peak independent 00:24:22.000 --> 00:24:25.000 living resource center, I guess that's 00:24:25.000 --> 00:24:28.000 what you get. So I have brown hair, 00:24:28.000 --> 00:24:31.000 olive complexion. I am wearing a black 00:24:31.000 --> 00:24:33.000 T-shirt that says "our homes, not 00:24:33.000 --> 00:24:37.000 institutions" so that's -- and I want 00:24:37.000 --> 00:24:42.000 to thank Kathy for inviting me to have 00:24:42.000 --> 00:24:46.000 this discussion. I think kind of the 00:24:46.000 --> 00:24:50.000 idea that -- you know, sort of behind 00:24:50.000 --> 00:24:53.000 the workshop itself was, you know, that 00:24:53.000 --> 00:24:55.000 across the past year and a half -- 00:24:55.000 --> 00:24:57.000 couple of years, Kathy and I have had 00:24:57.000 --> 00:25:01.000 several opportunity, you know, to have 00:25:01.000 --> 00:25:04.000 these kind of conversations together 00:25:04.000 --> 00:25:06.000 and, you know, and talk. I think -- 00:25:06.000 --> 00:25:09.000 you know, I've been around the 00:25:09.000 --> 00:25:14.000 independent living movement and center 00:25:14.000 --> 00:25:16.000 for independent living for many years 00:25:16.000 --> 00:25:18.000 and -- and then, within the past year 00:25:18.000 --> 00:25:22.000 and a half, have moved into the 00:25:22.000 --> 00:25:24.000 position of executive director. So you 00:25:24.000 --> 00:25:26.000 know, it's sort of across that time 00:25:26.000 --> 00:25:30.000 period, we've had opportunities to talk 00:25:30.000 --> 00:25:32.000 about and review the direction that our 00:25:32.000 --> 00:25:38.000 statewide independent living counsel 00:25:38.000 --> 00:25:40.000 and our centers have taken through the 00:25:40.000 --> 00:25:43.000 state of Kansas in the last several 00:25:43.000 --> 00:25:44.000 years. So we thought that it would be, 00:25:44.000 --> 00:25:46.000 hopefully, beneficial for other folks 00:25:46.000 --> 00:25:48.000 to be able to participate in that kind 00:25:48.000 --> 00:25:50.000 of a conversation. You know, I mean, 00:25:50.000 --> 00:25:54.000 Kathy has, you know, with her 00:25:54.000 --> 00:25:56.000 involvement with the national SILC 00:25:56.000 --> 00:25:58.000 organization has -- you know, and her 00:25:58.000 --> 00:26:02.000 history of mentorship and mentoring in 00:26:02.000 --> 00:26:05.000 the SILC network, has a lot of 00:26:05.000 --> 00:26:08.000 perspectives and a lot of different 00:26:08.000 --> 00:26:10.000 ideas and things that she has seen from 00:26:10.000 --> 00:26:11.000 SILCs around the country and the way 00:26:11.000 --> 00:26:13.000 that they, you know, sort of operate in 00:26:13.000 --> 00:26:17.000 their states. So we thought it would 00:26:17.000 --> 00:26:19.000 be a good chance for us to -- to review 00:26:19.000 --> 00:26:22.000 that and to sort of talk about the 00:26:22.000 --> 00:26:24.000 different factors that -- that get 00:26:24.000 --> 00:26:28.000 SILCs and centers -- you know, that 00:26:28.000 --> 00:26:30.000 sort of define as relationships and how 00:26:30.000 --> 00:26:32.000 they work together. So I guess that's 00:26:32.000 --> 00:26:35.000 -- at least my perspective on what 00:26:35.000 --> 00:26:36.000 we're going to do here today or, 00:26:36.000 --> 00:26:39.000 hopefully, what we're going to try to 00:26:39.000 --> 00:26:42.000 do. So I don't know. That's where 00:26:42.000 --> 00:26:43.000 we're at. 00:26:43.000 --> 00:26:46.000 » Kathy: All right. Well, like 00:26:46.000 --> 00:26:48.000 I said, Ami is way better at this than 00:26:48.000 --> 00:26:50.000 me. I didn't describe anything. So I 00:26:50.000 --> 00:26:52.000 will back up a little bit. I am in a 00:26:52.000 --> 00:26:54.000 very cluttered room. You can see 00:26:54.000 --> 00:26:57.000 suitcase, it's like I am ready to go on 00:26:57.000 --> 00:26:59.000 vacation at any point, but again, it's 00:26:59.000 --> 00:27:03.000 very cluttered. I have blond hair that 00:27:03.000 --> 00:27:05.000 is in desperate need of some 00:27:05.000 --> 00:27:10.000 professional help with the roots. But 00:27:10.000 --> 00:27:13.000 other than that (chuckling) we're -- 00:27:13.000 --> 00:27:18.000 you know, what we hope to do today is 00:27:18.000 --> 00:27:22.000 kind of help make the relationship 00:27:22.000 --> 00:27:30.000 between SILCs and CILs a little better 00:27:30.000 --> 00:27:32.000 if it's not already. In Kansas, I feel 00:27:32.000 --> 00:27:37.000 like we have a good relationship. We 00:27:37.000 --> 00:27:38.000 do this thing call ed IL network 00:27:38.000 --> 00:27:42.000 meetings and it's where I call the 00:27:42.000 --> 00:27:43.000 meeting, but in just really kind of the 00:27:43.000 --> 00:27:46.000 facilitator and to get the meeting 00:27:46.000 --> 00:27:47.000 rolling to ask the questions, get all 00:27:47.000 --> 00:27:52.000 the conversations started. All of the 00:27:52.000 --> 00:27:54.000 center directors are invited. Most 00:27:54.000 --> 00:27:56.000 generally, they always come. Sometimes 00:27:56.000 --> 00:27:58.000 there's things that happen and somebody 00:27:58.000 --> 00:28:00.000 can't come, but we do these meetings in 00:28:00.000 --> 00:28:03.000 person, not over the phone. We have 00:28:03.000 --> 00:28:05.000 found that you get much better 00:28:05.000 --> 00:28:06.000 participation when it's in person 00:28:06.000 --> 00:28:08.000 because, you know, the directors are 00:28:08.000 --> 00:28:11.000 busy and I understand that. I am busy, 00:28:11.000 --> 00:28:15.000 I get it. You know, and if we're on 00:28:15.000 --> 00:28:18.000 the phone, we try and do other things. 00:28:18.000 --> 00:28:21.000 So that -- I'm sorry, so that in 00:28:21.000 --> 00:28:24.000 person, face-to-face has really been 00:28:24.000 --> 00:28:27.000 beneficial. And we talked about some 00:28:27.000 --> 00:28:30.000 pretty tough things that we don't talk 00:28:30.000 --> 00:28:33.000 about on a normal basis in Kansas, you 00:28:33.000 --> 00:28:34.000 know, things like formula funding, what 00:28:34.000 --> 00:28:36.000 we would like it to look like. We'll 00:28:36.000 --> 00:28:38.000 probably start talking about 00:28:38.000 --> 00:28:41.000 territories and what that looks like in 00:28:41.000 --> 00:28:44.000 our state. Whether or not we're truly 00:28:44.000 --> 00:28:47.000 serving all the counties. You know, 00:28:47.000 --> 00:28:49.000 those kind of tough discussion, but 00:28:49.000 --> 00:28:50.000 they have to happen in order to make 00:28:50.000 --> 00:28:53.000 your state better. And if you don't 00:28:53.000 --> 00:28:56.000 have a good relationship between your 00:28:56.000 --> 00:28:58.000 SILC and your CILs, you really can't 00:28:58.000 --> 00:29:00.000 have those conversations. 00:29:00.000 --> 00:29:03.000 A little background on Kansas. 00:29:03.000 --> 00:29:07.000 We're a -- a minimally funded state 00:29:07.000 --> 00:29:11.000 through part B. We have 10 centers. 00:29:11.000 --> 00:29:13.000 Of those 10 centers, 6 receive part C 00:29:13.000 --> 00:29:16.000 and 4 receive part B or state general 00:29:16.000 --> 00:29:20.000 funds or some other type of, you know, 00:29:20.000 --> 00:29:21.000 concoction of funds to keep them 00:29:21.000 --> 00:29:29.000 running. 00:29:29.000 --> 00:29:30.000 Our SILC is a 1 person staff -- 00:29:30.000 --> 00:29:32.000 myself. Oh, let's see. Again, we're 00:29:32.000 --> 00:29:37.000 very rural and frontier state, so we 00:29:37.000 --> 00:29:39.000 have to look at a lot of area -- one 00:29:39.000 --> 00:29:44.000 center, I think, has 38 counties. 00:29:44.000 --> 00:29:45.000 That's a lot of counties to cover. So 00:29:45.000 --> 00:29:48.000 very different types of communities 00:29:48.000 --> 00:29:56.000 that our centers deal with. We have 00:29:56.000 --> 00:29:58.000 some big metropolitan areas. Not as 00:29:58.000 --> 00:30:00.000 big as other states, but we have some 00:30:00.000 --> 00:30:02.000 big metropolitan states that our state 00:30:02.000 --> 00:30:04.000 covers. So that's where we're coming 00:30:04.000 --> 00:30:06.000 from on this. I don't know, Ami, 00:30:06.000 --> 00:30:09.000 anything else about Kansas? 00:30:09.000 --> 00:30:12.000 » Ami: Um, yeah. Probably -- I 00:30:12.000 --> 00:30:14.000 mean, the -- yeah, that's a great 00:30:14.000 --> 00:30:16.000 description of the landscape of the 00:30:16.000 --> 00:30:17.000 centers. I mean, I think it is also -- 00:30:17.000 --> 00:30:19.000 I mean, I think there are a lot of 00:30:19.000 --> 00:30:24.000 people who are, you know, who have been 00:30:24.000 --> 00:30:26.000 familiar with, you know, our SILC, 00:30:26.000 --> 00:30:30.000 primarily because the person who sort 00:30:30.000 --> 00:30:34.000 of organized the SILC has been -- and 00:30:34.000 --> 00:30:38.000 for many years was the executive 00:30:38.000 --> 00:30:50.000 director was Shannon Jones. And so, in 00:30:50.000 --> 00:30:51.000 some sense, it's been interesting 00:30:51.000 --> 00:30:53.000 because we went from this person who 00:30:53.000 --> 00:30:57.000 was very much the definition of how we 00:30:57.000 --> 00:31:00.000 saw the SILC work in our state and then 00:31:00.000 --> 00:31:09.000 we had sort of transition issues with 00:31:09.000 --> 00:31:14.000 respect to our state government and the 00:31:14.000 --> 00:31:18.000 perspectives on the DSC -- designated 00:31:18.000 --> 00:31:20.000 state entity in our state felt thought 00:31:20.000 --> 00:31:23.000 that our SILC should be functioning. 00:31:23.000 --> 00:31:25.000 This all converged around the same time 00:31:25.000 --> 00:31:27.000 that the transition happened from the 00:31:27.000 --> 00:31:29.000 Department of Education to the 00:31:29.000 --> 00:31:33.000 Administration on Community living and 00:31:33.000 --> 00:31:35.000 the implementation of Weowa (phonetic) 00:31:35.000 --> 00:31:36.000 so having a good relationship and 00:31:36.000 --> 00:31:39.000 engaging -- you know, having this 00:31:39.000 --> 00:31:42.000 conversation on an ongoing basis about, 00:31:42.000 --> 00:31:45.000 you know, what is the rule of the SILC. 00:31:45.000 --> 00:31:47.000 You know, and what are the 00:31:47.000 --> 00:31:49.000 expectations from the very -- the many 00:31:49.000 --> 00:32:02.000 different constituencies that SILCs 00:32:02.000 --> 00:32:06.000 have to negotiate -- the CILs being one 00:32:06.000 --> 00:32:08.000 of these constituencies. Even though 00:32:08.000 --> 00:32:10.000 they are autonomous, there's an 00:32:10.000 --> 00:32:13.000 expectation with a relationship of some 00:32:13.000 --> 00:32:14.000 sort with the designated state entity, 00:32:14.000 --> 00:32:18.000 right? Passing through that, the 00:32:18.000 --> 00:32:19.000 administration on community living. 00:32:19.000 --> 00:32:21.000 SILCs, you know, have their own 00:32:21.000 --> 00:32:24.000 independent board of directors, as 00:32:24.000 --> 00:32:29.000 well. And then -- and then their 00:32:29.000 --> 00:32:32.000 constituencies, as centers for 00:32:32.000 --> 00:32:35.000 independent living -- and from my 00:32:35.000 --> 00:32:38.000 perspective, I regard the SILC as 00:32:38.000 --> 00:32:39.000 having a broader constituency, that 00:32:39.000 --> 00:32:42.000 sort of being all folks that are 00:32:42.000 --> 00:32:45.000 engaged in the independent living 00:32:45.000 --> 00:32:47.000 movement (phone ringing) and 00:32:47.000 --> 00:32:51.000 independent living services in the 00:32:51.000 --> 00:32:53.000 state. You know, and so there's -- I 00:32:53.000 --> 00:32:55.000 have a great deal of sympathy -- I 00:32:55.000 --> 00:32:57.000 mean, you know, as -- obviously, as a 00:32:57.000 --> 00:33:00.000 center director, you know, right -- I 00:33:00.000 --> 00:33:03.000 mean, I do have to keep my funders 00:33:03.000 --> 00:33:05.000 happy. My center, the only center in 00:33:05.000 --> 00:33:07.000 the state of Kansas that doesn't accept 00:33:07.000 --> 00:33:09.000 any state funding so I have less 00:33:09.000 --> 00:33:11.000 concern about keeping the DSE happy, 00:33:11.000 --> 00:33:14.000 but you know, obviously, you've got the 00:33:14.000 --> 00:33:15.000 administration on community living, my 00:33:15.000 --> 00:33:17.000 consumers, and my board of directors. 00:33:17.000 --> 00:33:19.000 I mean, those -- those are my -- you 00:33:19.000 --> 00:33:22.000 know, those are the people that I have 00:33:22.000 --> 00:33:26.000 to keep happy. Kathy has all those 00:33:26.000 --> 00:33:31.000 folks and then some. So -- so I'm not 00:33:31.000 --> 00:33:31.000 trading her jobs any time soon. 00:33:31.000 --> 00:33:35.000 (Laughter) 00:33:35.000 --> 00:33:40.000 » Kathy: So I think that maybe 00:33:40.000 --> 00:33:43.000 just one of the most basic things to 00:33:43.000 --> 00:33:50.000 convey in this is what is the SILCs 00:33:50.000 --> 00:33:53.000 role? What is its purpose? Why are we 00:33:53.000 --> 00:33:54.000 even here? So you know, I'm going go 00:33:54.000 --> 00:33:59.000 to the boring stuff but it's the 00:33:59.000 --> 00:34:02.000 important stuff. That's your Rehab Act 00:34:02.000 --> 00:34:04.000 and it talks about the statewide 00:34:04.000 --> 00:34:06.000 independent living counsel and all 00:34:06.000 --> 00:34:09.000 SILCs should know this so well. You 00:34:09.000 --> 00:34:11.000 know, that they should be able to quote 00:34:11.000 --> 00:34:13.000 it or find it or look at it because it 00:34:13.000 --> 00:34:16.000 really is our job description as a 00:34:16.000 --> 00:34:19.000 SILC. It talks about how we're, you 00:34:19.000 --> 00:34:21.000 know, comprised, who we have to have on 00:34:21.000 --> 00:34:23.000 our board -- it talks about the 00:34:23.000 --> 00:34:29.000 qualifications of those people. It 00:34:29.000 --> 00:34:31.000 talks about the terms. And then more 00:34:31.000 --> 00:34:32.000 importantly -- or as importantly, it 00:34:32.000 --> 00:34:37.000 talks about the functions or the duties 00:34:37.000 --> 00:34:39.000 of the council. This is good for CILs 00:34:39.000 --> 00:34:44.000 to know, as well, because it could 00:34:44.000 --> 00:34:46.000 clear up some questions or, you know, 00:34:46.000 --> 00:34:48.000 issues that some states are having. So 00:34:48.000 --> 00:34:50.000 it talks about our duties. The biggest 00:34:50.000 --> 00:34:53.000 duty we have is the development of that 00:34:53.000 --> 00:34:56.000 state plan. And you know, so it goes 00:34:56.000 --> 00:35:00.000 into who is supposed to be a part of 00:35:00.000 --> 00:35:02.000 that. You know, it's not just the SILC 00:35:02.000 --> 00:35:05.000 that develops the state plan. It is 00:35:05.000 --> 00:35:06.000 also the centers. And you know, a 00:35:06.000 --> 00:35:09.000 little more detail on that, it's the 00:35:09.000 --> 00:35:14.000 directors of the center. If you look 00:35:14.000 --> 00:35:19.000 at the CFR-45 and -- let's see, I have 00:35:19.000 --> 00:35:24.000 to write it down because I can't 00:35:24.000 --> 00:35:25.000 remember all the numbers. 1329.14, 15 00:35:25.000 --> 00:35:28.000 and 16 are really the big ones to take 00:35:28.000 --> 00:35:30.000 a look at it because it talks about, 00:35:30.000 --> 00:35:32.000 again, the duties of a SILC that you 00:35:32.000 --> 00:35:34.000 have to have one in the state or you 00:35:34.000 --> 00:35:36.000 can't draw on part B or C money. 00:35:36.000 --> 00:35:38.000 That's why it's so important that SILCs 00:35:38.000 --> 00:35:40.000 always be in compliance with their 00:35:40.000 --> 00:35:41.000 board and, you know, what -- who has to 00:35:41.000 --> 00:35:45.000 be on the board and all that. So 00:35:45.000 --> 00:35:47.000 that's important. But these will give 00:35:47.000 --> 00:35:49.000 you the blueprint of why the SILC is in 00:35:49.000 --> 00:35:51.000 here and what they are supposed to do. 00:35:51.000 --> 00:35:56.000 We have to meet regularly. We 00:35:56.000 --> 00:35:58.000 meet once a quarter. That's not a -- I 00:35:58.000 --> 00:35:59.000 think that's at least a best practice, 00:35:59.000 --> 00:36:01.000 but some SILCs meet more often. We 00:36:01.000 --> 00:36:05.000 have to help with the -- I want to call 00:36:05.000 --> 00:36:06.000 it the 704 but it's the PPR report. 00:36:06.000 --> 00:36:08.000 There's, you know, one that part C 00:36:08.000 --> 00:36:12.000 centers do and one that the state does. 00:36:12.000 --> 00:36:15.000 We help the DSE with that and they 00:36:15.000 --> 00:36:17.000 turn it on or we turn it in. It's so 00:36:17.000 --> 00:36:17.000 convoluted how it can be done, but we 00:36:17.000 --> 00:36:20.000 have to help with it. 00:36:20.000 --> 00:36:22.000 Coordinating activities. And that 00:36:22.000 --> 00:36:24.000 could mean so many different things. 00:36:24.000 --> 00:36:25.000 And then there's authorities that SILCs 00:36:25.000 --> 00:36:29.000 have and those are just extra stuff 00:36:29.000 --> 00:36:32.000 that now we can do. You know, one of 00:36:32.000 --> 00:36:33.000 the things that we can't ever do is 00:36:33.000 --> 00:36:36.000 provide independent living services. 00:36:36.000 --> 00:36:37.000 So that's important. That's one of our 00:36:37.000 --> 00:36:43.000 limitations. So it's good to know 00:36:43.000 --> 00:36:45.000 that. It's all there. It's all in the 00:36:45.000 --> 00:36:46.000 Rehab Act and all easy to find. 00:36:46.000 --> 00:36:49.000 But one other thing that I always 00:36:49.000 --> 00:36:51.000 -- when I talk to other SILCs and I am 00:36:51.000 --> 00:36:53.000 kind of hoping people who are new to 00:36:53.000 --> 00:36:55.000 this job or coming up -- one of the 00:36:55.000 --> 00:36:58.000 biggest thing, after I tell them to go 00:36:58.000 --> 00:37:02.000 look here and of course at the uniform 00:37:02.000 --> 00:37:06.000 guidance, but -- so section 725 -- 00:37:06.000 --> 00:37:08.000 well, part C, section 725 under the 00:37:08.000 --> 00:37:10.000 assurances for centers, number 12, I 00:37:10.000 --> 00:37:11.000 think it's a big one and an important 00:37:11.000 --> 00:37:15.000 one for SILCs to know, but also for 00:37:15.000 --> 00:37:18.000 centers to maybe revisit because that's 00:37:18.000 --> 00:37:20.000 the one that says that centers are 00:37:20.000 --> 00:37:21.000 supposed to give us their grant 00:37:21.000 --> 00:37:23.000 application, which I don't think a lot 00:37:23.000 --> 00:37:28.000 of people knew. That one was kind of 00:37:28.000 --> 00:37:29.000 new to me, but anyway, and the annual 00:37:29.000 --> 00:37:32.000 PPR. It's important for the SILC to 00:37:32.000 --> 00:37:35.000 have that so that we can use it as 00:37:35.000 --> 00:37:38.000 piece of the evaluation and monitoring 00:37:38.000 --> 00:37:41.000 of the state plan for independent 00:37:41.000 --> 00:37:43.000 living and we'll get into the whole 00:37:43.000 --> 00:37:46.000 what that really means because, 00:37:46.000 --> 00:37:50.000 sometimes, some SILCs don't understand 00:37:50.000 --> 00:37:52.000 that part of their duties all too well 00:37:52.000 --> 00:37:53.000 and that's gotten into a lot of 00:37:53.000 --> 00:37:55.000 relationship troubles between SILCs and 00:37:55.000 --> 00:37:58.000 CILs. So I feel like I have talked a 00:37:58.000 --> 00:38:06.000 lot, I want to let Ami jump in here. 00:38:06.000 --> 00:38:10.000 » Ami: I pushed mute and then I 00:38:10.000 --> 00:38:11.000 was like -- so, yeah. I think sort of 00:38:11.000 --> 00:38:14.000 to go along with that, I mean, you 00:38:14.000 --> 00:38:17.000 know, so obviously -- and this will 00:38:17.000 --> 00:38:21.000 probably seem like a surprise, but I 00:38:21.000 --> 00:38:23.000 actually did prepare for this. 00:38:23.000 --> 00:38:29.000 (Chuckling) so in so doing, you know, 00:38:29.000 --> 00:38:30.000 sort of I looked at it and spent some 00:38:30.000 --> 00:38:32.000 time -- some of the things that Kathy 00:38:32.000 --> 00:38:36.000 was referring to. You know, there are 00:38:36.000 --> 00:38:38.000 certain thing that is the statewide 00:38:38.000 --> 00:38:40.000 independent counsel, it says shall do. 00:38:40.000 --> 00:38:43.000 The things related to the development 00:38:43.000 --> 00:38:45.000 and monitoring of the Spil, keeping 00:38:45.000 --> 00:38:50.000 records, having meetings. And then 00:38:50.000 --> 00:38:51.000 this additional "shall" would be to 00:38:51.000 --> 00:38:54.000 coordinate activities with other 00:38:54.000 --> 00:38:57.000 entities in the state that provide 00:38:57.000 --> 00:38:59.000 services similar to or complementary to 00:38:59.000 --> 00:39:01.000 independent living services. So when I 00:39:01.000 --> 00:39:05.000 talked about having sort of that 00:39:05.000 --> 00:39:06.000 broader constituency, you know, sort of 00:39:06.000 --> 00:39:11.000 having -- to me, that's where that 00:39:11.000 --> 00:39:14.000 sense comes in is, you know, having a 00:39:14.000 --> 00:39:16.000 perspective on, you know, in our state, 00:39:16.000 --> 00:39:19.000 what does the developmental 00:39:19.000 --> 00:39:22.000 disabilities or the community mental 00:39:22.000 --> 00:39:24.000 health services, you know, look like 00:39:24.000 --> 00:39:28.000 and, you know, who are engaged with 00:39:28.000 --> 00:39:31.000 those services and, you know, and kind 00:39:31.000 --> 00:39:33.000 of keeping -- keeping a sense of how 00:39:33.000 --> 00:39:36.000 that works and coordinating that. 00:39:36.000 --> 00:39:39.000 So you have your "shalls" right? 00:39:39.000 --> 00:39:41.000 Not to get too lawyerly on folks. And 00:39:41.000 --> 00:39:44.000 so that's -- that's what you've got to 00:39:44.000 --> 00:39:47.000 do. But then, we move into this sort 00:39:47.000 --> 00:39:51.000 of less cut and dry area where it is 00:39:51.000 --> 00:39:53.000 "so your statewide independent living 00:39:53.000 --> 00:39:55.000 counsels then may..." they have these 00:39:55.000 --> 00:39:56.000 other. So the types of activities that 00:39:56.000 --> 00:39:58.000 Kathy was talking about, at the end, 00:39:58.000 --> 00:40:02.000 the sort of last part there, you know. 00:40:02.000 --> 00:40:04.000 And so, from -- you know, from the 00:40:04.000 --> 00:40:06.000 statute, it's the counsel may work with 00:40:06.000 --> 00:40:10.000 centers for independent living to 00:40:10.000 --> 00:40:16.000 coordinate services to improve services 00:40:16.000 --> 00:40:20.000 s provided to people with disabilities. 00:40:20.000 --> 00:40:23.000 The counsel may support research 00:40:23.000 --> 00:40:26.000 activities. And the counsel may 00:40:26.000 --> 00:40:30.000 perform other functions as the counsel 00:40:30.000 --> 00:40:36.000 deems appropriate. 00:40:36.000 --> 00:40:38.000 So again, I think probably the 00:40:38.000 --> 00:40:46.000 underlying theme that we have here 00:40:46.000 --> 00:40:48.000 today is this notion that, really, 00:40:48.000 --> 00:40:51.000 things are going to work best if the 00:40:51.000 --> 00:40:54.000 centers and the CILs see themselves in 00:40:54.000 --> 00:40:55.000 a partnership. If you have a statewide 00:40:55.000 --> 00:40:57.000 independent living counsel and the only 00:40:57.000 --> 00:41:00.000 resources that have been available to 00:41:00.000 --> 00:41:05.000 that counsel gives you one FTE, gives 00:41:05.000 --> 00:41:07.000 you one person, then looking at all of 00:41:07.000 --> 00:41:10.000 these "may" activities -- resource 00:41:10.000 --> 00:41:13.000 development. You know, kind of these 00:41:13.000 --> 00:41:18.000 other things, that becomes a lot less 00:41:18.000 --> 00:41:23.000 possible. You know, if we -- if 00:41:23.000 --> 00:41:24.000 centers haven't helped the SILC, you 00:41:24.000 --> 00:41:26.000 know, advocate for the resources that 00:41:26.000 --> 00:41:30.000 they need to be able to accomplish 00:41:30.000 --> 00:41:32.000 those things. Sorry. 00:41:32.000 --> 00:41:34.000 All right. Well, there's a few 00:41:34.000 --> 00:41:37.000 questions and, actually, yeah, we're 00:41:37.000 --> 00:41:38.000 good at starting to answer those at any 00:41:38.000 --> 00:41:40.000 point in time. Sorry, that's the part 00:41:40.000 --> 00:41:42.000 that I am very bad at 00:41:42.000 --> 00:41:48.000 » Kathy: Yeah, I just took a 00:41:48.000 --> 00:41:49.000 break here and started -- (chuckling) 00:41:49.000 --> 00:41:51.000 a break. I was looking at the 00:41:51.000 --> 00:41:53.000 questions and answers and thought, 00:41:53.000 --> 00:41:58.000 crap, they are building up 00:41:58.000 --> 00:42:02.000 » Ami: The first is for Kathy, 00:42:02.000 --> 00:42:04.000 does your SILC provide background 00:42:04.000 --> 00:42:04.000 checks before send to the governor's 00:42:04.000 --> 00:42:06.000 officer 00:42:06.000 --> 00:42:08.000 » Kathy: We have our own 00:42:08.000 --> 00:42:10.000 membership application that a person 00:42:10.000 --> 00:42:13.000 would fill out and if one of the board 00:42:13.000 --> 00:42:16.000 members does not know the person that 00:42:16.000 --> 00:42:18.000 is applying for our board, then I will 00:42:18.000 --> 00:42:20.000 call them and kind of interview them 00:42:20.000 --> 00:42:22.000 just to make sure they understand what 00:42:22.000 --> 00:42:25.000 independent living is and they have 00:42:25.000 --> 00:42:27.000 that philosophy and just to kind of see 00:42:27.000 --> 00:42:32.000 if they meet any of the other check 00:42:32.000 --> 00:42:34.000 marks that we're looking for. But as 00:42:34.000 --> 00:42:36.000 far as a background check like criminal 00:42:36.000 --> 00:42:38.000 or credit background check, no, we 00:42:38.000 --> 00:42:40.000 don't do any of that at the SILC. 00:42:40.000 --> 00:42:44.000 However, our governor's office, they 00:42:44.000 --> 00:42:46.000 have an extensive questionnaire or 00:42:46.000 --> 00:42:49.000 application that somebody fills out to 00:42:49.000 --> 00:42:52.000 be on any board for the State of Kansas 00:42:52.000 --> 00:42:54.000 and they -- they do look at a lot of 00:42:54.000 --> 00:42:55.000 that stuff. I don't know how thorough 00:42:55.000 --> 00:42:58.000 of a criminal background, but they do 00:42:58.000 --> 00:43:00.000 look at a lot of it. So there's the 00:43:00.000 --> 00:43:03.000 answer to that one. 00:43:03.000 --> 00:43:08.000 » Ami: Um, second one, is there 00:43:08.000 --> 00:43:10.000 an Arc in Kansas or some of the metro 00:43:10.000 --> 00:43:12.000 areas? I will just take it. There is 00:43:12.000 --> 00:43:17.000 no -- we don't have a statewide Arc. 00:43:17.000 --> 00:43:21.000 We do have a local Arc chapter in 00:43:21.000 --> 00:43:23.000 Lawrence, Kansas, and -- yeah, and 00:43:23.000 --> 00:43:28.000 actually, they are some of our favorite 00:43:28.000 --> 00:43:31.000 people. So but yeah, we don't have a 00:43:31.000 --> 00:43:34.000 statewide Arc. 00:43:34.000 --> 00:43:39.000 The next one is Kathy. Is the 00:43:39.000 --> 00:43:41.000 next steps for joining prior to the 00:43:41.000 --> 00:43:45.000 submission and does your DSE submit or 00:43:45.000 --> 00:43:47.000 does the SILC submit it 00:43:47.000 --> 00:43:49.000 » Kathy: This really depends on 00:43:49.000 --> 00:43:50.000 the state as far as what the best 00:43:50.000 --> 00:43:53.000 practice is. In my opinion, I think 00:43:53.000 --> 00:43:58.000 the best practice is that, yeah, you 00:43:58.000 --> 00:44:03.000 jointly -- you jointly put that PPR 00:44:03.000 --> 00:44:05.000 together. The way our state does it is 00:44:05.000 --> 00:44:07.000 -- they fill out all of the -- they get 00:44:07.000 --> 00:44:09.000 the information from the state centers 00:44:09.000 --> 00:44:12.000 that don't receive part C funding and, 00:44:12.000 --> 00:44:13.000 like I said, I think there's four of 00:44:13.000 --> 00:44:16.000 those and they put it altogether in a 00:44:16.000 --> 00:44:20.000 spread sheet and then put in the data 00:44:20.000 --> 00:44:22.000 elements into the report and then I -- 00:44:22.000 --> 00:44:25.000 the SILC -- I'm going to say me for 00:44:25.000 --> 00:44:30.000 that, but I fill it a lot of the 00:44:30.000 --> 00:44:32.000 information as far as coordination of 00:44:32.000 --> 00:44:34.000 services and are we -- you know, how 00:44:34.000 --> 00:44:35.000 have we met the state plan for 00:44:35.000 --> 00:44:37.000 independent living and, of course, all 00:44:37.000 --> 00:44:39.000 the SILC information. I do all that 00:44:39.000 --> 00:44:41.000 but I also go and I look at theirs 00:44:41.000 --> 00:44:43.000 because, quite honestly, in our state, 00:44:43.000 --> 00:44:47.000 we have gone through quite a few of 00:44:47.000 --> 00:44:51.000 what they call IL program managers that 00:44:51.000 --> 00:44:53.000 are -- that are the person that our DSE 00:44:53.000 --> 00:44:55.000 kind of uses to manage our grants that 00:44:55.000 --> 00:44:57.000 we receive from them to get the part B 00:44:57.000 --> 00:45:01.000 money and any other funding that comes 00:45:01.000 --> 00:45:06.000 through. So the DSE is actually the 00:45:06.000 --> 00:45:09.000 one who -- let me think if this is 00:45:09.000 --> 00:45:11.000 right, it's changed a couple of times. 00:45:11.000 --> 00:45:13.000 They put it all into the system and 00:45:13.000 --> 00:45:15.000 then I actually hit the submit button. 00:45:15.000 --> 00:45:17.000 So I go through and I check everything, 00:45:17.000 --> 00:45:19.000 I mark that I checked it and then I'm 00:45:19.000 --> 00:45:21.000 the one who actually hits submit. But 00:45:21.000 --> 00:45:23.000 I think it can be done either way. I 00:45:23.000 --> 00:45:28.000 don't think that the SILC should do the 00:45:28.000 --> 00:45:30.000 entire report, because I think -- you 00:45:30.000 --> 00:45:32.000 know, I think the DSE should do some of 00:45:32.000 --> 00:45:34.000 that work. And then it is -- it is 00:45:34.000 --> 00:45:36.000 very handy because they have the spread 00:45:36.000 --> 00:45:41.000 sheet that I can then use that breaks 00:45:41.000 --> 00:45:43.000 down all the centers and where, you 00:45:43.000 --> 00:45:44.000 know -- how many people they are 00:45:44.000 --> 00:45:46.000 serving and how many -- you know, what 00:45:46.000 --> 00:45:48.000 types of disabilities. You know, just 00:45:48.000 --> 00:45:51.000 that -- that data break down. It's 00:45:51.000 --> 00:45:53.000 kind of nice to see and have and I use 00:45:53.000 --> 00:45:56.000 a lot of that for my annual report that 00:45:56.000 --> 00:45:58.000 I put out that shows some of that stuff 00:45:58.000 --> 00:46:01.000 and much more. So I hope that answers 00:46:01.000 --> 00:46:05.000 that question. 00:46:05.000 --> 00:46:09.000 » Ami: The next question is how 00:46:09.000 --> 00:46:10.000 does one CIL serve 38 counties? Do 00:46:10.000 --> 00:46:10.000 they have one main office and several 00:46:10.000 --> 00:46:12.000 satellites? 00:46:12.000 --> 00:46:15.000 » Kathy: Well, and you jump in 00:46:15.000 --> 00:46:18.000 and help me on this. They have one 00:46:18.000 --> 00:46:20.000 main office. They used to have 00:46:20.000 --> 00:46:23.000 satellite offices in a couple of 00:46:23.000 --> 00:46:30.000 different areas. It is a huge piece of 00:46:30.000 --> 00:46:32.000 the state. It is, basically -- I mean 00:46:32.000 --> 00:46:34.000 -- I am looking at a map above me right 00:46:34.000 --> 00:46:36.000 now. It's the western portion and the 00:46:36.000 --> 00:46:40.000 -- and -- I mean, it's just a huge 00:46:40.000 --> 00:46:45.000 piece of estate. So you know, they 00:46:45.000 --> 00:46:47.000 send people out. There's a lot of 00:46:47.000 --> 00:46:49.000 time. This is one of the things that I 00:46:49.000 --> 00:46:55.000 say that we need to look at our 00:46:55.000 --> 00:46:58.000 territories and, in Kansas, we say all 00:46:58.000 --> 00:47:00.000 105 counties served. We have no 00:47:00.000 --> 00:47:04.000 unserved counties. However, do we have 00:47:04.000 --> 00:47:11.000 underserved counties? Absolutely. 00:47:11.000 --> 00:47:12.000 And, you know, regardless of who the 00:47:12.000 --> 00:47:15.000 center is that covers it, when you have 00:47:15.000 --> 00:47:16.000 that many county, it's hard to cover a 00:47:16.000 --> 00:47:18.000 huge portion of the state. We're 00:47:18.000 --> 00:47:20.000 talking a lot of miles. If you've ever 00:47:20.000 --> 00:47:23.000 seen Kansas on a map, it's pretty long. 00:47:23.000 --> 00:47:25.000 (Chuckling) so we have a lot of 00:47:25.000 --> 00:47:26.000 underserved counties that we will be 00:47:26.000 --> 00:47:30.000 taking a look at, I think, over the 00:47:30.000 --> 00:47:31.000 course of the next bill 00:47:31.000 --> 00:47:35.000 » Ami: Yeah, you know, and in 00:47:35.000 --> 00:47:36.000 some sense, you know, those 38 00:47:36.000 --> 00:47:41.000 counties, there are -- you know, there 00:47:41.000 --> 00:47:44.000 are a few of them here and there that 00:47:44.000 --> 00:47:46.000 receive, where other centers are 00:47:46.000 --> 00:47:48.000 contracted to provide other types of 00:47:48.000 --> 00:47:52.000 services in those areas, if that makes 00:47:52.000 --> 00:47:53.000 sense. So like employment services, 00:47:53.000 --> 00:47:58.000 for example. I do know that one of the 00:47:58.000 --> 00:48:00.000 other centers -- a number of those 38 00:48:00.000 --> 00:48:02.000 counties, even though they are 00:48:02.000 --> 00:48:05.000 technically in the IL service area of 00:48:05.000 --> 00:48:07.000 one center, actually get contract for 00:48:07.000 --> 00:48:09.000 employment services with a different 00:48:09.000 --> 00:48:14.000 center. So there's some aspect of it 00:48:14.000 --> 00:48:17.000 that is, "I get by with a Lil help from 00:48:17.000 --> 00:48:19.000 my friends" right? But also, I think 00:48:19.000 --> 00:48:22.000 to Kathy's point, this is really -- I 00:48:22.000 --> 00:48:24.000 mean, fundamentally -- I mean, you 00:48:24.000 --> 00:48:26.000 know, just to be as frank as possible, 00:48:26.000 --> 00:48:29.000 the answer is is that people have to be 00:48:29.000 --> 00:48:32.000 willing to trust each other enough to 00:48:32.000 --> 00:48:35.000 be honest about what our capacities are 00:48:35.000 --> 00:48:37.000 and, Quite frankly, that trust needs to 00:48:37.000 --> 00:48:39.000 be born of the idea that we're going to 00:48:39.000 --> 00:48:46.000 work together to make sure that we get 00:48:46.000 --> 00:48:51.000 enough resources so that those 38 00:48:51.000 --> 00:48:53.000 counties are actually, meaningfully 00:48:53.000 --> 00:48:55.000 receiving services. And that's -- 00:48:55.000 --> 00:48:57.000 that's the hard part. You know, I 00:48:57.000 --> 00:49:01.000 mean, that's the hard part of this 00:49:01.000 --> 00:49:03.000 whole -- this whole thing. And so 00:49:03.000 --> 00:49:06.000 that's -- I mean, David, I think you 00:49:06.000 --> 00:49:08.000 can probably reach right in there and 00:49:08.000 --> 00:49:09.000 put your finger on a nerve with that 00:49:09.000 --> 00:49:11.000 question, so -- 00:49:11.000 --> 00:49:12.000 » Kathy: But one of the 00:49:12.000 --> 00:49:15.000 important things of why this SILC has 00:49:15.000 --> 00:49:18.000 to be able to call all of the centers 00:49:18.000 --> 00:49:20.000 together and say, "hey, let's have a 00:49:20.000 --> 00:49:22.000 discussion." so you have to have a good 00:49:22.000 --> 00:49:24.000 relation ship with your centers. And 00:49:24.000 --> 00:49:27.000 you know what, I know not all those 00:49:27.000 --> 00:49:30.000 center directors love me. They don't 00:49:30.000 --> 00:49:32.000 all think of me as their best friend, 00:49:32.000 --> 00:49:33.000 but I'm okay with that because we can 00:49:33.000 --> 00:49:34.000 still have that professional 00:49:34.000 --> 00:49:38.000 relationship, but that -- I think that 00:49:38.000 --> 00:49:41.000 is a -- a main responsibility of your 00:49:41.000 --> 00:49:45.000 SILC and it's very hard to do -- I 00:49:45.000 --> 00:49:48.000 think it helps. I will say I think it 00:49:48.000 --> 00:49:48.000 really helps, though, that I have 00:49:48.000 --> 00:49:50.000 worked for centers of independent 00:49:50.000 --> 00:49:52.000 living, I have done almost every job 00:49:52.000 --> 00:49:57.000 you can do for a center at independent 00:49:57.000 --> 00:50:03.000 livering and I have dealt with home 00:50:03.000 --> 00:50:06.000 based services, which I think is a big 00:50:06.000 --> 00:50:07.000 piece of what they should do. That 00:50:07.000 --> 00:50:10.000 helps. I feel like the directors know 00:50:10.000 --> 00:50:10.000 that I know a little bit of what I am 00:50:10.000 --> 00:50:14.000 talking about -- just a little bit, but 00:50:14.000 --> 00:50:17.000 I think that helps. But yeah. 00:50:17.000 --> 00:50:21.000 » Ami: Well, I do think that 00:50:21.000 --> 00:50:23.000 leads us to this last question from 00:50:23.000 --> 00:50:24.000 Steven is what can be done to improve a 00:50:24.000 --> 00:50:27.000 disjointed relationship between centers 00:50:27.000 --> 00:50:29.000 and the SILC and the DSE? I think, if 00:50:29.000 --> 00:50:32.000 David wasn't -- if David hasn't already 00:50:32.000 --> 00:50:35.000 touched a nerve and David has probably 00:50:35.000 --> 00:50:37.000 hit on the heart of the matter here, as 00:50:37.000 --> 00:50:39.000 well. 00:50:39.000 --> 00:50:46.000 So if -- if you want my opinion, I 00:50:46.000 --> 00:50:48.000 mean, and this is sort of how -- I come 00:50:48.000 --> 00:50:51.000 to -- I come to this work from a pretty 00:50:51.000 --> 00:50:55.000 strong background in community 00:50:55.000 --> 00:50:58.000 organizing and a pretty ferocious 00:50:58.000 --> 00:51:02.000 commitment to consumer direction. And 00:51:02.000 --> 00:51:04.000 so, quite honestly, that's really where 00:51:04.000 --> 00:51:09.000 I always am going to take things back. 00:51:09.000 --> 00:51:11.000 You know, and so the answer is is if 00:51:11.000 --> 00:51:15.000 the needs and the choice and the 00:51:15.000 --> 00:51:17.000 dignity and the freedom of people with 00:51:17.000 --> 00:51:21.000 disabilities is guiding the thing that 00:51:21.000 --> 00:51:22.000 is are happening in your state, even 00:51:22.000 --> 00:51:25.000 people who don't get along with each 00:51:25.000 --> 00:51:27.000 other or who -- you know, who have 00:51:27.000 --> 00:51:31.000 trouble with each other eventually are 00:51:31.000 --> 00:51:35.000 going to get to the same place. Right? 00:51:35.000 --> 00:51:38.000 And so if there -- so, to me, 00:51:38.000 --> 00:51:41.000 generally, if there's a break down in 00:51:41.000 --> 00:51:43.000 that relationship, it's because one or 00:51:43.000 --> 00:51:49.000 more of the parties have sort of taken 00:51:49.000 --> 00:51:53.000 their eyes off of that -- off of that 00:51:53.000 --> 00:51:54.000 agreed upon concept, which is 00:51:54.000 --> 00:51:59.000 fundamentally, we are here to serve 00:51:59.000 --> 00:52:01.000 people with disabilities and to help 00:52:01.000 --> 00:52:02.000 people get the tools and resources they 00:52:02.000 --> 00:52:08.000 need to advocate for their integration 00:52:08.000 --> 00:52:10.000 in the community. And if in sort of 00:52:10.000 --> 00:52:13.000 the work that we do together, we can 00:52:13.000 --> 00:52:15.000 sort of always pull it back to that, 00:52:15.000 --> 00:52:17.000 even though we -- again, there may be 00:52:17.000 --> 00:52:21.000 disagreements about whose job it is to 00:52:21.000 --> 00:52:23.000 do what. We all have to make sure that 00:52:23.000 --> 00:52:26.000 we're, at the outset, all agreeing on 00:52:26.000 --> 00:52:29.000 the job that gets to get done. And so 00:52:29.000 --> 00:52:31.000 -- it's not an easy -- it's not an easy 00:52:31.000 --> 00:52:33.000 answer, but that's -- that's what I go 00:52:33.000 --> 00:52:36.000 back to. And quite frankly, as 00:52:36.000 --> 00:52:38.000 centers, as a SILC, that's where we get 00:52:38.000 --> 00:52:41.000 our -- I mean, we're protected that 00:52:41.000 --> 00:52:45.000 way. That is, you know, I mean, that 00:52:45.000 --> 00:52:48.000 is our single, greatest strength is 00:52:48.000 --> 00:52:50.000 that really everything we do is just 00:52:50.000 --> 00:52:51.000 supposed to be guided by those consumer 00:52:51.000 --> 00:52:56.000 directed principles. And if we're 00:52:56.000 --> 00:53:02.000 doing that, you know, even if the DSE 00:53:02.000 --> 00:53:04.000 is doing what DSEs do, right? They are 00:53:04.000 --> 00:53:09.000 being pure of course a I. That's where 00:53:09.000 --> 00:53:11.000 they are there for. If we reinforce 00:53:11.000 --> 00:53:12.000 time and time again to that 00:53:12.000 --> 00:53:15.000 bureaucracy, we are answerable to the 00:53:15.000 --> 00:53:17.000 same people that we are answerable to 00:53:17.000 --> 00:53:19.000 because they are. You know, our job is 00:53:19.000 --> 00:53:23.000 simply to, you know, sort of amplify 00:53:23.000 --> 00:53:25.000 those voices and to use the knowledge 00:53:25.000 --> 00:53:28.000 and the access that we have to help 00:53:28.000 --> 00:53:30.000 those voices get the services and 00:53:30.000 --> 00:53:32.000 supports they need so that our 00:53:32.000 --> 00:53:34.000 communities are integrated. So I don't 00:53:34.000 --> 00:53:37.000 know, that's -- 00:53:37.000 --> 00:53:43.000 » Kathy: I think it helps -- 00:53:43.000 --> 00:53:45.000 this is where it's very important for a 00:53:45.000 --> 00:53:48.000 SILC to be autonomous. If it's not 00:53:48.000 --> 00:53:49.000 autonomous from the DSE, you won't have 00:53:49.000 --> 00:53:51.000 that respect . we struggled with that 00:53:51.000 --> 00:53:54.000 in Kansas for quite some time and it 00:53:54.000 --> 00:53:57.000 was very helpful when ACL did come 00:53:57.000 --> 00:54:04.000 around and say, nope, SILCs have to be 00:54:04.000 --> 00:54:06.000 autonomous. You will see in This SPILL 00:54:06.000 --> 00:54:08.000 phase that we just got done writing, it 00:54:08.000 --> 00:54:10.000 was very important and pushed that the 00:54:10.000 --> 00:54:12.000 SILCs explain that they are autonomous. 00:54:12.000 --> 00:54:15.000 It helps in situations like that 00:54:15.000 --> 00:54:16.000 because you can say all day long that, 00:54:16.000 --> 00:54:18.000 well, you just have to have a good 00:54:18.000 --> 00:54:20.000 relationship with your DSE. You just 00:54:20.000 --> 00:54:21.000 have to have a good relationship with 00:54:21.000 --> 00:54:23.000 your DSE. Well, it's not always up to 00:54:23.000 --> 00:54:25.000 you and, sometimes, you have to push 00:54:25.000 --> 00:54:29.000 back and that autonomy is there to help 00:54:29.000 --> 00:54:31.000 you with that. But I think it's also 00:54:31.000 --> 00:54:35.000 important that you have to -- your 00:54:35.000 --> 00:54:42.000 network has to understand that your 00:54:42.000 --> 00:54:46.000 peers -- the CILs are peers to the 00:54:46.000 --> 00:54:47.000 SILC. The DSE is peer to the SILCs and 00:54:47.000 --> 00:54:49.000 the CILs and you have to have that 00:54:49.000 --> 00:54:50.000 understanding. That's a hard 00:54:50.000 --> 00:54:52.000 conversation to have but you have to be 00:54:52.000 --> 00:54:54.000 willing to have it and people have to 00:54:54.000 --> 00:54:56.000 be willing to put all of the BS out 00:54:56.000 --> 00:54:57.000 there and not be territory I can't 00:54:57.000 --> 00:55:01.000 believe on certain things and then you 00:55:01.000 --> 00:55:04.000 can do that. So that kind of -- that's 00:55:04.000 --> 00:55:05.000 kind of a drawn out, so I guess we will 00:55:05.000 --> 00:55:07.000 go to the next question 00:55:07.000 --> 00:55:08.000 » Ami: It's the same kind of -- 00:55:08.000 --> 00:55:10.000 the question is what should be the 00:55:10.000 --> 00:55:14.000 relationship between the SILCs, CILs 00:55:14.000 --> 00:55:16.000 and public in the development of the 00:55:16.000 --> 00:55:19.000 SPIL and who should be the charge? 00:55:19.000 --> 00:55:21.000 » Kathy: Yeah. Well, I mean, I 00:55:21.000 --> 00:55:23.000 think this is kind of answered in the 00:55:23.000 --> 00:55:28.000 regs. That is one of the primary 00:55:28.000 --> 00:55:33.000 duties of the SILC is to develop the 00:55:33.000 --> 00:55:34.000 SPIL. So I feel like the SILC should 00:55:34.000 --> 00:55:36.000 lead the charge and make sure that the 00:55:36.000 --> 00:55:39.000 process is happening. Now, by no means 00:55:39.000 --> 00:55:41.000 do I mean that the SILC has like a 00:55:41.000 --> 00:55:43.000 bigger piece of the voting pie or any 00:55:43.000 --> 00:55:47.000 of that kind of stuff because we don't. 00:55:47.000 --> 00:55:51.000 It takes those three elements of 00:55:51.000 --> 00:55:53.000 signatures -- the SILC, the CILs and 00:55:53.000 --> 00:55:55.000 the DSE. So I think the SILC should 00:55:55.000 --> 00:55:57.000 lead the charge, they should 00:55:57.000 --> 00:55:58.000 facilitate, get out there, do the 00:55:58.000 --> 00:56:01.000 public meetings and all that kind of 00:56:01.000 --> 00:56:03.000 stuff, but you have to absolutely have 00:56:03.000 --> 00:56:10.000 to have the center directors helping 00:56:10.000 --> 00:56:12.000 you. We're very fortunate in Kansas 00:56:12.000 --> 00:56:15.000 that we had all the CIL directors come. 00:56:15.000 --> 00:56:16.000 It was absolutely amazing. They can 00:56:16.000 --> 00:56:19.000 also bring some staff if they wanted. 00:56:19.000 --> 00:56:22.000 We had a room of like 16 people and we 00:56:22.000 --> 00:56:24.000 sat there for an entire day and put 00:56:24.000 --> 00:56:27.000 that SPIL together and agreed on every 00:56:27.000 --> 00:56:35.000 single piece of that SPIL. So it's 00:56:35.000 --> 00:56:38.000 easy to get signatures that way. 00:56:38.000 --> 00:56:40.000 » Ami: This is Ami. I think 00:56:40.000 --> 00:56:43.000 that we -- the way we started to 00:56:43.000 --> 00:56:49.000 develop the SPIL has -- it's changed 00:56:49.000 --> 00:56:57.000 through the years, as well. . The 00:56:57.000 --> 00:56:59.000 reality is the SILC doesn't provide 00:56:59.000 --> 00:57:01.000 independent services. So it's really 00:57:01.000 --> 00:57:06.000 dependent upon the centers to regard 00:57:06.000 --> 00:57:08.000 the role in the development of the SPIL 00:57:08.000 --> 00:57:12.000 as a partnership and to provide that 00:57:12.000 --> 00:57:15.000 input opportunity for constituency, for 00:57:15.000 --> 00:57:18.000 consumers, for -- you know, the public 00:57:18.000 --> 00:57:19.000 to be participants in that SPIL 00:57:19.000 --> 00:57:22.000 process. And again, so Kathy, through 00:57:22.000 --> 00:57:24.000 the years, we've had, you know, public 00:57:24.000 --> 00:57:27.000 input sessions and things like that, so 00:57:27.000 --> 00:57:28.000 -- you know what I mean, it's not 00:57:28.000 --> 00:57:31.000 necessarily that I am carrying the 00:57:31.000 --> 00:57:32.000 water, you know, for our consumer, but 00:57:32.000 --> 00:57:35.000 we're also giving them an opportunity 00:57:35.000 --> 00:57:42.000 to actively participate in the process, 00:57:42.000 --> 00:57:45.000 as well E. so that's -- that's -- so 00:57:45.000 --> 00:57:47.000 how do you feel SILCs and cells can do 00:57:47.000 --> 00:57:56.000 to publicize our mission? Most sit 00:57:56.000 --> 00:57:56.000 Venns do not know what we do. Amen, 00:57:56.000 --> 00:57:58.000 Jack 00:57:58.000 --> 00:58:00.000 » Kathy: That's tough 00:58:00.000 --> 00:58:06.000 » Ami: Getting back to the whole 00:58:06.000 --> 00:58:08.000 "shall" and "may" right? I can tell 00:58:08.000 --> 00:58:10.000 you, our state for statewide 00:58:10.000 --> 00:58:13.000 independent living has included a 00:58:13.000 --> 00:58:15.000 specific, you know, sort of goal around 00:58:15.000 --> 00:58:17.000 out reach, you know, for the past -- at 00:58:17.000 --> 00:58:24.000 least the past, I think, probably four 00:58:24.000 --> 00:58:26.000 or five years. And so yeah, I think 00:58:26.000 --> 00:58:30.000 it's -- I think, number one, nothing 00:58:30.000 --> 00:58:32.000 happens by accident, right? And so the 00:58:32.000 --> 00:58:36.000 -- it's funny because for 17 year, 00:58:36.000 --> 00:58:37.000 right, I have been hanging around 00:58:37.000 --> 00:58:39.000 Topeka independent living resource 00:58:39.000 --> 00:58:42.000 center. And for years, I was the 00:58:42.000 --> 00:58:49.000 person who was completing our 704 00:58:49.000 --> 00:58:52.000 report and so for a long time, it was 00:58:52.000 --> 00:58:57.000 like I felt like when I sat down in 00:58:57.000 --> 00:58:59.000 November or whenever to do our 704 00:58:59.000 --> 00:59:00.000 report, there was the things that my 00:59:00.000 --> 00:59:02.000 center did, right? So here's the 00:59:02.000 --> 00:59:04.000 statistics, here's the vignettes, 00:59:04.000 --> 00:59:08.000 here's all of this. And then, sort of 00:59:08.000 --> 00:59:11.000 at the end, I looked at the SPIL and 00:59:11.000 --> 00:59:15.000 was like, "okay, how do I fit the 00:59:15.000 --> 00:59:20.000 things that we did into the objectives 00:59:20.000 --> 00:59:22.000 in the SPIL?" I mean, it was this sort 00:59:22.000 --> 00:59:26.000 of backwards process. And through the 00:59:26.000 --> 00:59:30.000 past few years, as we changed sort of 00:59:30.000 --> 00:59:32.000 that process of the development of the 00:59:32.000 --> 00:59:35.000 SPIL, it's become more of a -- it's -- 00:59:35.000 --> 00:59:39.000 I do a lot less of that retrofitting 00:59:39.000 --> 00:59:41.000 and a lot more of that intentional 00:59:41.000 --> 00:59:47.000 stuff sort of as we go along. And so, 00:59:47.000 --> 00:59:49.000 I think, you know, outreach is a prime 00:59:49.000 --> 00:59:50.000 example of that -- of the need to have 00:59:50.000 --> 00:59:53.000 -- the car drives the directions that 00:59:53.000 --> 01:00:10.000 your eyes are pointed. And if you feel 01:00:10.000 --> 01:00:12.000 like publicity and outreach and ways to 01:00:12.000 --> 01:00:15.000 put that forward. One way that Kathy 01:00:15.000 --> 01:00:17.000 has done well for the -- when she gets 01:00:17.000 --> 01:00:19.000 that 704 -- well, whatever it is, the 01:00:19.000 --> 01:00:21.000 PPR. When she gets that report, you 01:00:21.000 --> 01:00:26.000 know, she does prepare sort of like a 01:00:26.000 --> 01:00:27.000 one pager. That makes that available 01:00:27.000 --> 01:00:29.000 -- so we can put that out. You know, 01:00:29.000 --> 01:00:31.000 here's what centers for independent 01:00:31.000 --> 01:00:32.000 living centers did in the state of 01:00:32.000 --> 01:00:35.000 Kansas. Here's the number of people 01:00:35.000 --> 01:00:37.000 that moved out of institutions. Here's 01:00:37.000 --> 01:00:39.000 a number of people who got employment. 01:00:39.000 --> 01:00:47.000 Here's a number of kids that we helped 01:00:47.000 --> 01:00:49.000 transition from high school to their 01:00:49.000 --> 01:00:51.000 next steps. Those kinds of things are 01:00:51.000 --> 01:00:57.000 helpful to start to tell that story 01:00:57.000 --> 01:01:04.000 about what it is that we do. 01:01:04.000 --> 01:01:12.000 Let's see, so okay your take on 01:01:12.000 --> 01:01:15.000 the roll of CILs and SILC -- and part C 01:01:15.000 --> 01:01:16.000 funding should be distributed among 01:01:16.000 --> 01:01:19.000 CILs. Seems to me what rehab act is 01:01:19.000 --> 01:01:21.000 telling us is that we need to do 01:01:21.000 --> 01:01:24.000 together is to strengthen the network 01:01:24.000 --> 01:01:30.000 of centers. So if there are some very 01:01:30.000 --> 01:01:33.000 underfunded center, should they look to 01:01:33.000 --> 01:01:35.000 get additional new funds to make them 01:01:35.000 --> 01:01:39.000 viable which would mean that some of 01:01:39.000 --> 01:01:41.000 the new ones wouldn't get funds, not 01:01:41.000 --> 01:01:46.000 allocating current but perhaps how we 01:01:46.000 --> 01:01:47.000 allocate new funding 01:01:47.000 --> 01:01:49.000 » Kathy: I will jump in here 01:01:49.000 --> 01:01:55.000 because Amy, you have a better answer 01:01:55.000 --> 01:01:57.000 than I do. But I will say this is one 01:01:57.000 --> 01:01:59.000 area of the CILs that I feel we were 01:01:59.000 --> 01:02:02.000 rock stars on. We came in and because 01:02:02.000 --> 01:02:10.000 of those network meetings that we had 01:02:10.000 --> 01:02:13.000 previously. We did that by looking at 01:02:13.000 --> 01:02:15.000 the population of the counties and also 01:02:15.000 --> 01:02:19.000 mileage or whatever and then we 01:02:19.000 --> 01:02:21.000 weighted that -- it seems like a 60/40 01:02:21.000 --> 01:02:23.000 weight and we said if any new funding 01:02:23.000 --> 01:02:26.000 comes in, this is what we want used. 01:02:26.000 --> 01:02:28.000 But only after centers are all at the 01:02:28.000 --> 01:02:30.000 same base level and we determined a 01:02:30.000 --> 01:02:32.000 base level that everybody was 01:02:32.000 --> 01:02:35.000 comfortable with and so we've had that 01:02:35.000 --> 01:02:37.000 hard discussion and I think that's when 01:02:37.000 --> 01:02:40.000 those network meetings were so 01:02:40.000 --> 01:02:43.000 important because, again, looking at 01:02:43.000 --> 01:02:46.000 that piece of Kansas that is so big, 01:02:46.000 --> 01:02:48.000 covered by one center, would that be a 01:02:48.000 --> 01:02:52.000 perfect area for a new center to come 01:02:52.000 --> 01:02:55.000 in? Possibly, but we also looked at 01:02:55.000 --> 01:02:57.000 other areas that are already covered by 01:02:57.000 --> 01:03:00.000 centers and how -- what the percentage 01:03:00.000 --> 01:03:02.000 of people with disabilities that they 01:03:02.000 --> 01:03:04.000 were serving and that was huge. It was 01:03:04.000 --> 01:03:10.000 actually very shocking to know that 01:03:10.000 --> 01:03:13.000 some of our established centers in 01:03:13.000 --> 01:03:16.000 metropolitan areas were covering such 01:03:16.000 --> 01:03:18.000 small percentage. For whatever reason, 01:03:18.000 --> 01:03:20.000 not even going into that, it's a very 01:03:20.000 --> 01:03:23.000 good thing to do to put that type of 01:03:23.000 --> 01:03:25.000 data together and Ami was a huge piece 01:03:25.000 --> 01:03:26.000 of that. I like to think, well, I 01:03:26.000 --> 01:03:28.000 called everybody together and, you 01:03:28.000 --> 01:03:30.000 know, had the conversation. But Ami 01:03:30.000 --> 01:03:33.000 got the data. She put it together. 01:03:33.000 --> 01:03:34.000 She even color coded it. It was 01:03:34.000 --> 01:03:39.000 wonderful. But you know, that's a huge 01:03:39.000 --> 01:03:42.000 piece of it. Not only can you say 01:03:42.000 --> 01:03:44.000 here's an unemotional approach to how 01:03:44.000 --> 01:03:47.000 do we give centers funding, how do we 01:03:47.000 --> 01:03:48.000 fund new centers and all that kind of 01:03:48.000 --> 01:03:51.000 stuff. So that's -- 01:03:51.000 --> 01:03:54.000 » Ami: yeah, but like -- I mean, 01:03:54.000 --> 01:03:55.000 and it -- I mean, what Kathy is talking 01:03:55.000 --> 01:03:59.000 about isn't a hypothetical. I mean, 01:03:59.000 --> 01:04:00.000 you know, what actually happened -- 01:04:00.000 --> 01:04:02.000 well, what actually happened was, you 01:04:02.000 --> 01:04:04.000 know, our state came and said, hey, 01:04:04.000 --> 01:04:06.000 we've got some more money and how 01:04:06.000 --> 01:04:09.000 should we divide it out? And you know, 01:04:09.000 --> 01:04:18.000 and so it really did -- I mean, you 01:04:18.000 --> 01:04:21.000 know, sort of going back to that 01:04:21.000 --> 01:04:26.000 original question about how to navigate 01:04:26.000 --> 01:04:29.000 the relationship between the CIL and 01:04:29.000 --> 01:04:33.000 the SILC, it was the ability for all of 01:04:33.000 --> 01:04:39.000 us to kind of set down egos and focus 01:04:39.000 --> 01:04:41.000 on, you know, how are people being 01:04:41.000 --> 01:04:43.000 served and how can we recognize that 01:04:43.000 --> 01:04:47.000 the barriers to providing independent 01:04:47.000 --> 01:04:51.000 living services are vastly different 01:04:51.000 --> 01:05:00.000 for somebody that's providing services 01:05:00.000 --> 01:05:04.000 to 38 counties versus my center. I'm 01:05:04.000 --> 01:05:07.000 the only center in the state that has 01:05:07.000 --> 01:05:11.000 one county and one county only. So to 01:05:11.000 --> 01:05:16.000 me, you know, it doesn't -- it's an 01:05:16.000 --> 01:05:18.000 academic exercise, which maybe is why I 01:05:18.000 --> 01:05:21.000 felt comfortable coming in and stomping 01:05:21.000 --> 01:05:23.000 all over it. I don't know, but -- 01:05:23.000 --> 01:05:25.000 (chuckling) -- but the reality is is 01:05:25.000 --> 01:05:27.000 that -- you know, I'm perfectly willing 01:05:27.000 --> 01:05:32.000 to admit, you know, that -- you know, I 01:05:32.000 --> 01:05:35.000 don't have to worry about time, I can 01:05:35.000 --> 01:05:36.000 make it from the other side of my 01:05:36.000 --> 01:05:40.000 county to the other side of my county 01:05:40.000 --> 01:05:42.000 in 25 minutes. I feel very much like I 01:05:42.000 --> 01:05:44.000 can see where we're underserving people 01:05:44.000 --> 01:05:46.000 and where we -- you know, where we can 01:05:46.000 --> 01:05:50.000 be doing better and recognize that 01:05:50.000 --> 01:05:52.000 those barriers are completely different 01:05:52.000 --> 01:05:55.000 from somebody who literally has to 01:05:55.000 --> 01:06:00.000 drive 120 miles to get from one corner 01:06:00.000 --> 01:06:04.000 of their service area to the other. 01:06:04.000 --> 01:06:06.000 And try to find resources -- housing, 01:06:06.000 --> 01:06:08.000 you know, in rural communities. 01:06:08.000 --> 01:06:10.000 Employment. You know, sort of all 01:06:10.000 --> 01:06:14.000 those barriers. And so, you know, so I 01:06:14.000 --> 01:06:17.000 guess with respect to the question 01:06:17.000 --> 01:06:24.000 about, you know, new funding is -- I 01:06:24.000 --> 01:06:27.000 mean, I -- I think that, you know, 01:06:27.000 --> 01:06:28.000 really, building trust and setting up a 01:06:28.000 --> 01:06:30.000 conversation in a way that is -- you 01:06:30.000 --> 01:06:34.000 know, what is best? You know, would it 01:06:34.000 --> 01:06:37.000 be best to put in a new center or how 01:06:37.000 --> 01:06:39.000 can we -- or what does sufficient 01:06:39.000 --> 01:06:43.000 funding look like in a formula that 01:06:43.000 --> 01:06:46.000 sees to it that the existing center can 01:06:46.000 --> 01:06:47.000 serve the existing, you know, area. 01:06:47.000 --> 01:06:51.000 That just is a conversation that people 01:06:51.000 --> 01:06:55.000 have to get themselves to be okay to 01:06:55.000 --> 01:06:59.000 have. 01:06:59.000 --> 01:07:02.000 So oh here's one of our favorite 01:07:02.000 --> 01:07:05.000 questions. This is one of my favorite 01:07:05.000 --> 01:07:06.000 questions. It's the part that Kathy is 01:07:06.000 --> 01:07:13.000 like, "hell, no, I don't want to try to 01:07:13.000 --> 01:07:15.000 monitor these ass holes!" so our DSE 01:07:15.000 --> 01:07:18.000 feels like the SILC is supposed to 01:07:18.000 --> 01:07:21.000 monitor the CIL. They constantly refer 01:07:21.000 --> 01:07:22.000 back to RSA and the need for 01:07:22.000 --> 01:07:28.000 monitoring, what do you recommend for 01:07:28.000 --> 01:07:33.000 us to help educate their Department of 01:07:33.000 --> 01:07:35.000 Vocational re habilitation about The 01:07:35.000 --> 01:07:37.000 role of the SILC 01:07:37.000 --> 01:07:39.000 » Kathy: Hopefully, you feel 01:07:39.000 --> 01:07:41.000 like your autonomous from the D SE. If 01:07:41.000 --> 01:07:43.000 you are not, that's a big place to 01:07:43.000 --> 01:07:45.000 start. Quite honestly, I think the 01:07:45.000 --> 01:07:47.000 regs are so clear on this that we're 01:07:47.000 --> 01:07:50.000 not here to monitor the centers in any 01:07:50.000 --> 01:07:51.000 way, shape or form. We're here to 01:07:51.000 --> 01:07:58.000 monitor and evaluate the state plan for 01:07:58.000 --> 01:08:01.000 independent living and that's a very 01:08:01.000 --> 01:08:04.000 distinct difference. You know, I would 01:08:04.000 --> 01:08:09.000 -- hopefully, your DSE joins in on some 01:08:09.000 --> 01:08:14.000 of those ILRU calls. They have these 01:08:14.000 --> 01:08:19.000 calls that they do for centers and for 01:08:19.000 --> 01:08:21.000 the SILC and the DSE. I would highly 01:08:21.000 --> 01:08:22.000 recommend that they get signed up for 01:08:22.000 --> 01:08:24.000 that because they are going to hear the 01:08:24.000 --> 01:08:26.000 answer to that there, as well. You can 01:08:26.000 --> 01:08:31.000 also go back to those regs and point 01:08:31.000 --> 01:08:34.000 out what it says that SILC's 01:08:34.000 --> 01:08:35.000 responsibilities are -- and, I mean, I 01:08:35.000 --> 01:08:38.000 -- you just have to be firm on it. You 01:08:38.000 --> 01:08:41.000 have to go back -- go back to the law, 01:08:41.000 --> 01:08:45.000 go back to, you know, this presentation 01:08:45.000 --> 01:08:48.000 and just say, in absolutely no way 01:08:48.000 --> 01:08:56.000 shape or form are SILCs responsible or 01:08:56.000 --> 01:08:59.000 would we ever want them to monitor the 01:08:59.000 --> 01:08:59.000 responsibility 01:08:59.000 --> 01:09:01.000 CILs because that's not our 01:09:01.000 --> 01:09:03.000 » Ami: It's always interest to 01:09:03.000 --> 01:09:06.000 me that the DSE -- I mean, because like 01:09:06.000 --> 01:09:08.000 -- it looks like in that state the same 01:09:08.000 --> 01:09:11.000 as it is in Kansas. The DSE, they are 01:09:11.000 --> 01:09:14.000 not just money handlers, right? They 01:09:14.000 --> 01:09:17.000 also -- they also supervise direct 01:09:17.000 --> 01:09:22.000 services, you know, through the 01:09:22.000 --> 01:09:25.000 Department of VR. So they actually 01:09:25.000 --> 01:09:27.000 bring more perspective (chuckling) on 01:09:27.000 --> 01:09:32.000 those aspects of service delivery than 01:09:32.000 --> 01:09:34.000 the SILC where it very specifically 01:09:34.000 --> 01:09:36.000 says, you know, in the law, the SILC 01:09:36.000 --> 01:09:38.000 doesn't provide direct services, so why 01:09:38.000 --> 01:09:40.000 in the world would somebody who doesn't 01:09:40.000 --> 01:09:44.000 do the thing, you know, be the people 01:09:44.000 --> 01:09:48.000 that you want monitoring and 01:09:48.000 --> 01:09:51.000 supervising the thing. (Chuckling) it 01:09:51.000 --> 01:09:53.000 is just not a particularly good model, 01:09:53.000 --> 01:09:55.000 so -- yeah. And so I would -- if it 01:09:55.000 --> 01:10:06.000 were me, you know, I would -- I would 01:10:06.000 --> 01:10:11.000 just, you know, no, no, no, we monitor 01:10:11.000 --> 01:10:13.000 the SPIL 01:10:13.000 --> 01:10:16.000 » Kathy: In the state of Kansas, 01:10:16.000 --> 01:10:17.000 the SILC falls under the open records 01:10:17.000 --> 01:10:19.000 act so, you know, it's not like I have 01:10:19.000 --> 01:10:21.000 it on my website or anything, but if 01:10:21.000 --> 01:10:27.000 somebody were to ask for it, I would 01:10:27.000 --> 01:10:29.000 definitely provide it. It's -- I don't 01:10:29.000 --> 01:10:30.000 know why you would want to hide it. I 01:10:30.000 --> 01:10:32.000 really don't. I feel like everybody 01:10:32.000 --> 01:10:34.000 needs to be very accountable and 01:10:34.000 --> 01:10:35.000 transparent and you save yourself so 01:10:35.000 --> 01:10:38.000 much headache that way. I don't know 01:10:38.000 --> 01:10:42.000 why you would want to hide it. I would 01:10:42.000 --> 01:10:48.000 definitely give it to anybody. 01:10:48.000 --> 01:10:49.000 » Ami: We're at the ten minute 01:10:49.000 --> 01:10:51.000 warning and there's a few different 01:10:51.000 --> 01:10:55.000 kind of questions so I am going to kind 01:10:55.000 --> 01:10:57.000 of take some. So someone is talking 01:10:57.000 --> 01:11:01.000 about CILs and SILCs working together 01:11:01.000 --> 01:11:04.000 in supporting grass roots community and 01:11:04.000 --> 01:11:07.000 organizing civil disobedience and then 01:11:07.000 --> 01:11:08.000 there's this youth and powerment 01:11:08.000 --> 01:11:10.000 academies and similarly to me -- I am 01:11:10.000 --> 01:11:14.000 going to lump these altogether -- the 01:11:14.000 --> 01:11:16.000 value of the SILC being a 501-C-3. If 01:11:16.000 --> 01:11:17.000 the council members aren't providing 01:11:17.000 --> 01:11:19.000 services and things like that. Because 01:11:19.000 --> 01:11:21.000 I do think -- all of these questions, I 01:11:21.000 --> 01:11:25.000 mean, really kind of, to me, go to the 01:11:25.000 --> 01:11:29.000 same kind of -- the same kind of place. 01:11:29.000 --> 01:11:31.000 You know, which is back to the sort of 01:11:31.000 --> 01:11:35.000 title. It's sort of what is it? You 01:11:35.000 --> 01:11:38.000 know, that CILs think that our SILC, 01:11:38.000 --> 01:11:39.000 you know, is there for or should be 01:11:39.000 --> 01:11:45.000 doing and how do we sort of work all of 01:11:45.000 --> 01:11:47.000 that out? And I mean, I think -- the 01:11:47.000 --> 01:11:49.000 answer is, you know, that we've got the 01:11:49.000 --> 01:11:57.000 things, right? We've got the black and 01:11:57.000 --> 01:11:59.000 white things, we've got the "shall" 01:11:59.000 --> 01:12:02.000 things and then in the universe of the 01:12:02.000 --> 01:12:04.000 "May "things. So they have to remember 01:12:04.000 --> 01:12:09.000 that what the universe is going to do 01:12:09.000 --> 01:12:10.000 is what the SPIL outlines and that's 01:12:10.000 --> 01:12:14.000 going to be their guiding star. But 01:12:14.000 --> 01:12:16.000 their guiding star is also what their 01:12:16.000 --> 01:12:18.000 council or the board of directors -- 01:12:18.000 --> 01:12:21.000 just like the CILs, what my board of 01:12:21.000 --> 01:12:23.000 directors tells me to do in terms of 01:12:23.000 --> 01:12:26.000 policy, where do I turn my eyes to. So 01:12:26.000 --> 01:12:33.000 a SILC having a 501-C-3 could be 01:12:33.000 --> 01:12:38.000 important because the SPIL and/or the 01:12:38.000 --> 01:12:39.000 board of that CIL may say we want you 01:12:39.000 --> 01:12:41.000 to help with resource development up to 01:12:41.000 --> 01:12:46.000 and including the -- you know, the 01:12:46.000 --> 01:12:48.000 locating, you know, supervising, 01:12:48.000 --> 01:12:49.000 superintending -- and that -- some 01:12:49.000 --> 01:12:52.000 SILCs do that, that's one of the 01:12:52.000 --> 01:12:54.000 biggest things to recognize is that 01:12:54.000 --> 01:12:59.000 there really isn't uniformity amongst 01:12:59.000 --> 01:13:04.000 what SILCs do. And so, you know -- and 01:13:04.000 --> 01:13:07.000 so, for example, you know, the SILC in 01:13:07.000 --> 01:13:09.000 Kansas, when Shannon was our executive 01:13:09.000 --> 01:13:11.000 director and in its initial iteration, 01:13:11.000 --> 01:13:13.000 the board that it had and the 01:13:13.000 --> 01:13:16.000 priorities that the SILC had at that 01:13:16.000 --> 01:13:18.000 point in time were very much focused on 01:13:18.000 --> 01:13:21.000 providing kind of the policy advocacy 01:13:21.000 --> 01:13:24.000 that was working hand in hand with our 01:13:24.000 --> 01:13:26.000 community organizing. And that was -- 01:13:26.000 --> 01:13:28.000 I mean, you know, that temperature is 01:13:28.000 --> 01:13:32.000 determined by what the SPIL says and by 01:13:32.000 --> 01:13:34.000 what the board says and, as center, 01:13:34.000 --> 01:13:37.000 we're not divorced from that process 01:13:37.000 --> 01:13:41.000 because we can -- we can be part of 01:13:41.000 --> 01:13:44.000 developing that SPIL, as well as we can 01:13:44.000 --> 01:13:47.000 serve on the board and/or we can attend 01:13:47.000 --> 01:13:49.000 the meetings and we can help develop, 01:13:49.000 --> 01:13:50.000 you know, sort of the priorities and 01:13:50.000 --> 01:13:52.000 The flavor of that center for 01:13:52.000 --> 01:13:55.000 independent --over the statewide 01:13:55.000 --> 01:13:57.000 independent livving council and how we 01:13:57.000 --> 01:14:00.000 I their role. You know, as much as 01:14:00.000 --> 01:14:04.000 anything. Once we've got the "shalls" 01:14:04.000 --> 01:14:06.000 and we're into the "mays" you know, 01:14:06.000 --> 01:14:10.000 right, it's all about that universe of 01:14:10.000 --> 01:14:13.000 how have we influenced that SPIL? How 01:14:13.000 --> 01:14:19.000 are we promoting, you know, cooperation 01:14:19.000 --> 01:14:21.000 and mutual goals? And how are we 01:14:21.000 --> 01:14:24.000 actively participating in getting those 01:14:24.000 --> 01:14:26.000 things done? That's, I guess -- 01:14:26.000 --> 01:14:28.000 » Kathy: And I think a big thing 01:14:28.000 --> 01:14:34.000 is is that keeping your SILC in the 01:14:34.000 --> 01:14:36.000 loop on the advocacy issues that the 01:14:36.000 --> 01:14:39.000 centers are working on. It helps the 01:14:39.000 --> 01:14:41.000 SILC to be able to then make that an 01:14:41.000 --> 01:14:43.000 advocacy priority for the SILC, as 01:14:43.000 --> 01:14:45.000 well. But you've got to keep them in 01:14:45.000 --> 01:14:46.000 the loop. It can't be "we're going to 01:14:46.000 --> 01:14:49.000 hide everything that we're doing from 01:14:49.000 --> 01:14:51.000 the SILC" and I am very fortunate, 01:14:51.000 --> 01:14:53.000 again, in Kansas, that I have the 01:14:53.000 --> 01:14:56.000 centers that do that. They do keep me 01:14:56.000 --> 01:14:56.000 in the loop. So that has helped quite 01:14:56.000 --> 01:15:02.000 a bit 01:15:02.000 --> 01:15:04.000 » Ami: And this is Ami: To 01:15:04.000 --> 01:15:09.000 that point, when Kathy was talking 01:15:09.000 --> 01:15:11.000 about the formulas, when CARES act came 01:15:11.000 --> 01:15:12.000 down -- thanks to folks that helped 01:15:12.000 --> 01:15:14.000 with that -- there were a certain 01:15:14.000 --> 01:15:16.000 number of centers in Kansas who, 01:15:16.000 --> 01:15:18.000 because they don't receive any part C 01:15:18.000 --> 01:15:21.000 funds, they didn't get anything. And 01:15:21.000 --> 01:15:26.000 so to us, it was a very natural thing 01:15:26.000 --> 01:15:28.000 to turn to Kathy -- you know, to turn 01:15:28.000 --> 01:15:30.000 to the State wide independent living 01:15:30.000 --> 01:15:32.000 council and ask -- you know, we're 01:15:32.000 --> 01:15:34.000 making it our own advocacy priority, 01:15:34.000 --> 01:15:36.000 but as somebody who can come in and 01:15:36.000 --> 01:15:38.000 sort of have their arms around, you 01:15:38.000 --> 01:15:40.000 know, folks, depending on if you are 01:15:40.000 --> 01:15:43.000 part C, part B, blended funded, 01:15:43.000 --> 01:15:44.000 whatever, you know, can you help us 01:15:44.000 --> 01:15:47.000 carry that water and try to move that 01:15:47.000 --> 01:15:50.000 forward with our DSE and find some 01:15:50.000 --> 01:15:56.000 funds for those centers. 01:15:56.000 --> 01:15:59.000 Steve is asking about the federal 01:15:59.000 --> 01:16:02.000 funding and, as similarly as I can put 01:16:02.000 --> 01:16:05.000 it, Steve, funding is allocated on the 01:16:05.000 --> 01:16:08.000 basis of population for the -- for the 01:16:08.000 --> 01:16:08.000 counties that are served by that 01:16:08.000 --> 01:16:13.000 center. 01:16:13.000 --> 01:16:15.000 And then how Kathy finds board 01:16:15.000 --> 01:16:19.000 members, I have no idea. 01:16:19.000 --> 01:16:21.000 » Kathy: (Chuckling) um, you 01:16:21.000 --> 01:16:22.000 know -- boy, I think every board 01:16:22.000 --> 01:16:24.000 struggles with this. Again, having a 01:16:24.000 --> 01:16:27.000 good relationship with the centers has 01:16:27.000 --> 01:16:28.000 made it easier because now I am 01:16:28.000 --> 01:16:32.000 starting to get referrals from the 01:16:32.000 --> 01:16:34.000 centers on people they think would be 01:16:34.000 --> 01:16:38.000 good, effective board members. I 01:16:38.000 --> 01:16:40.000 always ask the centers because, you 01:16:40.000 --> 01:16:42.000 know, they may have a consumer that 01:16:42.000 --> 01:16:47.000 they know wants to become more involved 01:16:47.000 --> 01:16:50.000 and that's always wonderful. If they 01:16:50.000 --> 01:16:51.000 have employees that are retiring or 01:16:51.000 --> 01:16:53.000 leaving or doing something else, that's 01:16:53.000 --> 01:16:55.000 always an excellent board member to 01:16:55.000 --> 01:16:57.000 have. They know the community, so 01:16:57.000 --> 01:17:01.000 they'll know other people out there. 01:17:01.000 --> 01:17:05.000 You know, but honestly, it's word of 01:17:05.000 --> 01:17:09.000 mouth. I sent the letters, I have sent 01:17:09.000 --> 01:17:14.000 the requests to, you know, every single 01:17:14.000 --> 01:17:15.000 organization in Kansas and I never get 01:17:15.000 --> 01:17:17.000 response back on those: So it's always 01:17:17.000 --> 01:17:21.000 word of mouth. I always push my board 01:17:21.000 --> 01:17:22.000 members that this is one of their 01:17:22.000 --> 01:17:24.000 responsibilities. It, quite honestly, 01:17:24.000 --> 01:17:25.000 shouldn't be up to the staff of the 01:17:25.000 --> 01:17:27.000 SILC and then they have that staff 01:17:27.000 --> 01:17:33.000 picking who their boss is. I have seen 01:17:33.000 --> 01:17:36.000 that go so wrong. I worked at center 01:17:36.000 --> 01:17:37.000 who did that and it was one of the 01:17:37.000 --> 01:17:39.000 worse experiences ever. They didn't 01:17:39.000 --> 01:17:41.000 get the right people, they chose their 01:17:41.000 --> 01:17:42.000 friends. I don't think that's what a 01:17:42.000 --> 01:17:46.000 SILC board should be, so I always 01:17:46.000 --> 01:17:48.000 encourage the SILC board, they need to 01:17:48.000 --> 01:17:49.000 be out there recruiting people in the 01:17:49.000 --> 01:17:52.000 different aspects of what they are 01:17:52.000 --> 01:17:54.000 doing. So but again, the CILs are 01:17:54.000 --> 01:17:57.000 helping. We have the Kansas disability 01:17:57.000 --> 01:17:59.000 caucus in Kansas and I just got a 01:17:59.000 --> 01:18:02.000 referral from a person who is working 01:18:02.000 --> 01:18:03.000 on that and he's, obviously, a perfect 01:18:03.000 --> 01:18:04.000 member for the board so he's going 01:18:04.000 --> 01:18:07.000 through the application process, but 01:18:07.000 --> 01:18:11.000 that's how we do it 01:18:11.000 --> 01:18:15.000 » Ami: Mona mentions in the chat 01:18:15.000 --> 01:18:17.000 former DD council members are a 01:18:17.000 --> 01:18:20.000 fantastic -- you know, and Kathy is 01:18:20.000 --> 01:18:24.000 right, there's a lot of sort of cross 01:18:24.000 --> 01:18:27.000 pollination, shall we say. So no, no, 01:18:27.000 --> 01:18:31.000 we're sort of closing in on an hour. 01:18:31.000 --> 01:18:37.000 It -- it went fast. Sorry for talking 01:18:37.000 --> 01:18:39.000 so fast. You know, but -- I think 01:18:39.000 --> 01:18:42.000 probably -- again, you know, just 01:18:42.000 --> 01:18:44.000 getting back to sort of my -- you know, 01:18:44.000 --> 01:18:45.000 my core values on this is that, you 01:18:45.000 --> 01:18:47.000 know, if you look around the country, 01:18:47.000 --> 01:18:50.000 it's very easy to say, you know, why 01:18:50.000 --> 01:18:52.000 isn't our state -- why isn't our SILC 01:18:52.000 --> 01:18:54.000 doing this? You know, like why -- why 01:18:54.000 --> 01:18:56.000 don't we have this amazing SILC that is 01:18:56.000 --> 01:18:58.000 doing all of this, you know, resource 01:18:58.000 --> 01:19:01.000 development or whatever? Why don't we 01:19:01.000 --> 01:19:04.000 -- you know, and the reality is is that 01:19:04.000 --> 01:19:06.000 those SILCs are the partnership that 01:19:06.000 --> 01:19:11.000 we, as centers for independent living, 01:19:11.000 --> 01:19:12.000 make them. And you know, just as our 01:19:12.000 --> 01:19:15.000 services are consumer directed on an 01:19:15.000 --> 01:19:18.000 individual basis and our priorities as 01:19:18.000 --> 01:19:22.000 a center are consumer directed, so are 01:19:22.000 --> 01:19:24.000 our SILCs. And so is that 01:19:24.000 --> 01:19:25.000 relationship. So it is critically 01:19:25.000 --> 01:19:28.000 important that we honor that and hold 01:19:28.000 --> 01:19:33.000 that up and that we learn to work our 01:19:33.000 --> 01:19:35.000 way through that so that -- so that 01:19:35.000 --> 01:19:39.000 really, literally, we can have a plan, 01:19:39.000 --> 01:19:42.000 you know, not an accident. We can have 01:19:42.000 --> 01:19:44.000 concerted effort statewide that 01:19:44.000 --> 01:19:46.000 promotes community integration and the 01:19:46.000 --> 01:19:48.000 services and supports that people with 01:19:48.000 --> 01:19:50.000 disabilities everywhere in our state 01:19:50.000 --> 01:19:53.000 can have access to. That's -- that's 01:19:53.000 --> 01:19:54.000 what it comes down to. So -- Kathy? 01:19:54.000 --> 01:19:56.000 » Kathy: Um, I think the one 01:19:56.000 --> 01:19:58.000 thing that I want to just say really 01:19:58.000 --> 01:20:00.000 quick here is that the -- the 01:20:00.000 --> 01:20:06.000 relationships have to be respected. 01:20:06.000 --> 01:20:08.000 Again, the SILC is autonomous. We're 01:20:08.000 --> 01:20:12.000 autonomous from the DSE, but we're 01:20:12.000 --> 01:20:15.000 autonomous from anybody else, too. So the relationship aspect of it is huge. 01:20:15.000 --> 01:20:20.000 Respect it. You guys are peers. SILC, 01:20:20.000 --> 01:20:28.000 DSE, everybody is a peer, nobody is 01:20:28.000 --> 01:20:30.000 above or below. 01:20:30.000 --> 01:20:33.000 I think we did it. We're done 01:20:33.000 --> 01:20:35.000 » Brooke: Thank you to Kathy and 01:20:35.000 --> 01:20:37.000 Ami. There will be a survey link 01:20:37.000 --> 01:20:39.000 dropped in the chat box. It is also 01:20:39.000 --> 01:20:51.000 available on the conference website. 01:20:51.000 --> 01:20:54.000 So please, take your evaluation survey. 01:20:54.000 --> 01:21:05.000 Thanks, guys. 01:21:05.000 --> 01:21:06.000 (End 1 1:00 a.m.) 01:21:06.000 --> 01:21:06.000 *This text is being provided in a rough draft format . Communication be a totally verbatim record of the 01:21:06.000 --> 01:21:08.000 Access Realtime Translation (CART) is provided in order to facilitate communication accessibility and may not 01:21:08.000 --> 01:21:38.000 proceedings .* 01:23:52.000 --> 01:23:55.000